On International Clinical Trials Day, STAND4Kids attended the event Clinical Trials: Inclusion and Patient Involvement in Clinical Research, organised by APIFARMA and EUPATI Portugal. Ricardo Fernandes joined the roundtable “Patient Involvement in Clinical Research: The Road Ahead”, contributing to a discussion on how to strengthen patient engagement, including the voices of children and families, in...Continue Reading
The STAND4Kids National Pediatric Network is organising an event on “Health Literacy in Paediatric Clinical Research”, taking place on 23rd April, from 10:00 to 12:30, at Auditorium 58, Floor 01, Egas Moniz Building, Lisbon School of Medicine, University of Lisbon (FMUL). This event will launch an exhibition showcasing the work of students who participated in...Continue Reading
The STAND4Kids pediatric network provides support to research sites throughout the lifecycle of each adopted trial, in alignment with the Sponsor/CRO who is responsible for the trial execution in line with legislation and Good Clinical Practice. As a facilitator and mediator working with sites, the STAND4Kids team works with researchers and study teams to solve...Continue Reading
Our “Highlights” this month are dedicated to our activities from November to February. Check out our highlights with the main activities of STAND4Kids network towards the promotion of high quality pediatric clinical trials in Portugal. Download [HERE]. Continue Reading
We start 2023 with an overview of the last two years of activity of our national network of pediatric trials and with a summary of our initiatives. Check out our highlights with the main activities of STAND4Kids network from 2020 to 2022 towards the to promotion of high quality pediatric clinical trials in Portugal. Download...Continue Reading
The Epilepsy Week is an initiative from Liga Portuguesa contra a Epilepsia (Portuguese League against Epilepsy) which celebrates 50 years in 2021. During this week, several events took place, such as webinars, workshops and symposia that addressed various epilepsy-related themes. Prof. Doutor Ricardo Fernandes participated in the Webinar “Space for Epilepsy Patients’ Associations” and presented...Continue Reading
On the 12th March STAND4Kids launched their Sharing Sessions, bimestral meetings with the research centres from its network. We aim at creating an environment where sites/ investigators/ research teams share their experiences and knowledge, to strengthen our network and promote Pediatric Clinical Research in Portugal.Continue Reading
KD-CAAP is the first investigator driven trial funded by conect4children to have a site activated and to start the patients’ recruitment. KD-CAAP main objective is to determine whether adding immediate corticosteroid treatment to standard of care (intravenous immunoglobulin (IVIG) and aspirin) will reduce coronary artery aneurysm (CAA) rates in Kawasaki Disease patients. Find more about...Continue Reading
This project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No 777389. The Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA
